Life with Crohn’s Disease

Crohn's disease

Life with Crohn’s Disease

Hi, welcome to Gma’sPhoto! Today I would like to share my life with Crohn’s Disease. First and foremost**-
Nothing on this website should be considered medical advice. Always consult a doctor before making any changes to your diet, medical plan, or exercise routine. Please refer to the disclaimer.

Let me first begin with, ‘What is Crohn’s disease?‘ To get a complete explanation, click the link. In my words, it’s the sshitz….. literally.

I was diagnosed at age 17. It took many years to understand what foods I could eat without triggering the horrible side affects of the disease. Stress interrupted my food intake, what my gut could and could not tolerate at that moment in my life. The weeks leading up to me qualifying for my CDL and learning a new route was a stressful time for me. Keep this in mind as you are reading….

Past employers have been wonderful working with me and my need to have restroom access as needed. However, my newest job is a tricky one. My supervisor has been wonderful. There was an incident that I could have lost my job because of the actions I took at the time of one of those restroom needs.

At this moment and time of my life, I have had to make another adjustment to my lifestyle. This will include carrying a bag of necessities on the bus. This bag will include an extra pair of pants, panties, baby wipes and a potty pad. You heard correct, a potty pad. I am now a CDL Bus driver. Thank goodness, my longest route is 2 to 2.5 hours. There is no bathroom on a bus. So guess what? I will need to pooh my britches if a bathroom urge strikes. Not looking forward to this. One of my requests was no cloth seat 🙂 I will be sitting on a potty pad!

The incident I referenced above, I could have lost my job because I did not pooh my britches. It was necessary for the administration correction taken. There is a plan now in place. Luckily the superintendent of the district is aware of Crohn’s and understood the meaning of, ‘I need to go now’! Of course, I had to provide a doctor’s note stating my diagnosis and what was needed medically for me to be successful. All is good for now. I am sure this will provide opportunities of some humorous post follow ups 😂

In all seriousness, Crohn’s is not a fun diagnosis to live with. On the other hand, I would much prefer to talk about it instead of talking about it when an ‘accident’ occurs and I am very embarrassed. Granted talking about pooh for most is embarrassing butt (pun intended), could you image how embarrassing it would be if you had to pooh your britches?

Should you have experience with Crohn’s or Ulcerative colitis, let me know. We can share tips and tricks to avoid those embarrassing moments.

Take Care. Best wishes, Debra
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It’s Official!

cdl

It’s Official

Hello. Yes, it’s official; I am a certified Student Delivery Specialist! I am thrilled to be able to pick up and deliver students to and from school 🙂 Today’s post will be rather lengthy, bear with me.

The past 10 weeks has been a bit fearful and wonderful. That’s right. You may wonder how it can be both at the same time. Let me explain.

I honestly thought career wise I was working where I would retire. My husband plans on retiring a second time in 3 years and I would like to retire as well. I, on the other hand, will need to wait 5 years. Insurance is a huge consideration. Sixty five is the magic number for me to be able to receive/qualify for Medicare. Working from home for a company that contracted with the state for childcare is not an easy job, very stressful. I kept saying I wish I could work part time. One day while driving past the school there was this huge sign posted, bus drivers needed.

That’s all it took. I called and inquired. Benefits included: Part-time; Major medical premiums paid; Holidays and Summer off; a Pay raise and a Company vehicle. I applied and got the job. All I needed to do was a Dept of Transportation physical and of course get a CDL. If you are interested, here is the online handbook I needed to study and then pass a written test.

First was the physical. One of the questions asked was about sleep. Of course I admitted to having a CPAP machine. Keep in mind I had not been using it. During my exam, the practitioner stated I would need to provide at least a three month report of CPAP usage. From the appointment date, three months would be middle November. A blow to my plans. So I asked the director of transportation (my boss) if I could do something while I worked on the required report. Her answer was absolutely. I actually began working for the school district as a para for the special ed buses. With this information, I provided my two week notice to the childcare employment. This is when the ‘fear’ factor presented itself.

Instead of being paid every other week, it would be once monthly. My first check would only be two weeks. That’s spooky in itself! My husband was very supportive and we worked that through. Then I had to study for the test. At this time I was studying on my own for the permit. The written text consisted of a general test, passenger test and then school bus test. Each test could be taken for a total of 4 times. If you could not pass, then you would need to wait six months to take the test again. It took me four times to pass the general test. The first three was taken at the Lawrence drivers license office. My trainer helped me study and instructed me to go to the Topeka office, requesting a written test. The other times it was done on a computer and I thought if I skipped a question it was an automatic wrong mark. The test was 50 questions and could not miss more than 10. Each time the test was different and I had missed 11. The day came for me to take the test for the fourth time. I was very anxious. Took the general test and passed, only missing two questions. Took the next two and passed them the first time.

The next few weeks I was preparing for the skills test. This included knowing the vehicle under the hood and the inside and outside of the bus, motor parts and light functions. After mastering backing the bus, pulling forward, parallel parking and demonstrating what to do when picking/dropping students off at bus stops, when approaching train tracks and a few other situations, it was time to go for the skills test. Luckily the lady who assisted me the day of my written tests was the one who was my skills examiner.

its official
The day I became an official student delivery specialist!

The wonderful. I work part time. This has been so amazing! I actually felt a bit guilty for not working more. There will be times when I will drive field trips, like the one coming up on Dec 7th. It’s a Saturday, I will be taking the wrestling team to a meet. It will be a full day and the whole day I will get paid 🙂 My boss said end of February, March and April there will be many field trips for all three schools, grade, middle and high school. For now I am wanting to take the extra trips. When Kevin does retire, then I will go back to just the 20 hours. I am a social butterfly and the human interactions is important to me.

This week there is no school Nov 24-29. I have never had this much time off for Thanksgiving! The downside, students have had the cold and pneumonia and I now have the cold. It’s been nice hanging out at home, eating chicken noodle soup and watching movies. Our Thanksgiving with the family will be Saturday. I should be over my cold by then.

After driving the students for the past two weeks, I can tell you stories of what happens on the bus routes. Parents beware, your kid may be a little angel at home but………
👼
I absolutely love being a Student Delivery Specialist. The kids are angels. Just keep in mind if they come home and tell you a story about the bus driver doing a break check, it’s not a break check! They do not see everything the driver sees. I drive many country gravel roads and it’s deer rutting season. 🙂

coworkers
A group of my co-workers.

Take Care. Best wishes, Debra
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Inspiration

inspiration

Inspiration | My Sunday Snapshot #28

Hi, welcome to My Sunday Snapshot 28! Today’s image did not materialize until just this morning. Hence, my later than usual post time. I first need to explain the conversation I had with Kevin last evening. Out of the blue, he asked, ‘Would you want to go to 8 O’Clock church tomorrow?‘. Sure!

So this morning while selecting the clothes to wear, I was going thru my closet. Starting at one end, I looked at each of my shirts. As I was nearing the end, I had found THE one. It reminded me of my Aunt Phyllis.

Aunt Phyllis
Adam and Aunt Phyllis

Here I am wearing my Auntie P inspired shirt!

inspiration

The sermon was just what I needed to hear. It was like the Good Lord knew I was going to be there. 🙂

My day is filled with love.

Have a wonderful week!

Take Care. Best wishes, Debra
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my Sunday snapshot
Pictures can produce so many different emotions and feelings. As they say, a picture is worth a thousand words! Share your fun and interesting image from the past week.

My Sunday Snapshot 28

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Men’s Mental Illness

men's mental illness

Men’s Mental Illness

Hi, welcome to Gma’sPhoto! This post was inspired by our trip to St. Joseph, MO for our summer party fireworks purchase. On our drive, we always stop into one particular Chinese restaurant. It was here, in May 2011 our journey with men’s mental illness began. I call it our dark days.

Thank God, I am being totally sincere. Not at all saying HIS name in vain. We are out of the dark (as long as our son is taking his meds). Occasionally, there may be a cloudy day, metaphorically. For this I am very grateful.

I want to share our experience as parents of a young male adult child at his onset of mental illness. I had felt like I missed something when he was growing up. The what if’s consumed me. This is the beginning of our story, Kevin and Debra’s story.

men's mental illness
One of my favorite photos with me and Adam.

Telling the story now, I have the hindsight. Just wish what I know now, I had known earlier when Adam was still in middle and high school. Adam tended to be more emotional than our daughter. While Adam was in his senior year in high school he worked on the senior slide show for the class graduation. Adam and a couple other guys were part of the group. One of Adam’s comments was that this other kid was getting all the credit. He mentioned it several different times. According to Adam, Adam was doing most of the work. Okay, nothing too unordinary right? On with my story.

Graduation comes and goes. Summertime is here. Adam was getting nose bleeds. Not too uncommon, especially when he experiences allergies. He goes off to college. All is going great. His grades are better than when he was in high school. He was able to focus on his interest, arts. First year of college was fabulous. Summer rolled around. Adam wanted to live in Lawrence for the summer. Grandma and Grandpa said it was okay that he stay with them, with conditions. Those conditions were he could not smoke, do drugs and stay out late. No problem.

Age of onset of mental disorders. Roughly half of all lifetime mental disorders in most studies start by the mid-teens and three quarters by the mid-20s. Later onsets are mostly secondary conditions. Severe disorders are typically preceded by less severe disorders that are seldom brought to clinical attention.”

source one

Our son was graduating from community college May 2011. We were proud, are still proud parents. We invited family to attend the ceremony and after for dinner to celebrate. Kevin and I had drove North to Hiawatha where Adam attended community college. When we got there, Adam was no where to be found. One of his roommates said he had already left. We were confused. We called Adam and he said he did not want to go to graduation. He was driving back to Lawrence to my parents home where he was going to stay for the summer.

We called Kevin’s parents, Kevin’s sister and her husband, our daughter and her family. My parents already knew so we did not need to call them. Luckily no one else drove the whole way to the graduation. We had them meet us at the Chinese resturaunt. What an evening.

During the summer Adam became more paranoid. My parents had Adam go to the doctor office for drug tests, on more than one occasion. Each were random. Every time the tests would come back negative. One night Adam’s behavior was such that my parents called the police. Adam was taken to the hospital. Erika had gone to the hospital to be with Adam. Upon his release from hospital, Kevin and I had to acknowledge we would be responsible for Adam and that he would be in our care. This is when we observed his behaviors we only heard of from my parents.

Adam had many different behaviors. More than I can recall. Just that his behavior was not right. Adam did tell us he had been taking drugs and knew which ones helped him to concentrate and stay focused. Adam’s doctor is the same doctor I went to and the one my parents went to. This was a major factor in the help we received for Adam. Kevin and I went to this doctor. The doctor said drugs was not the concern at this time, it was his mental state. A few recommendations for the best doctor for Adam were given to us.

Adam began his treatment. I had previously sought legal advice about guardianship. The attorney asked if we had doctor statement that this would be in Adam’s best interest. At this time we did not have this and the attorney said it would be very hard to get guardianship granted.

Eventually, Adam had a ‘team’ that consisted of his Case Worker and therapist. Adam made a few poor decisions that resulted in his therapist to refer Adam to a psychologist. The psychologist (Dr.J) did an intensive session with Adam and ultimately she provided a letter stating it would be in Adam’s best interest to have a guardian. Once we had her letter, the family doctor also wrote a letter supporting the guardianship. Adam’s therapist wrote her letter supporting guardianship. The psychologist (Dr.E) who prescribes Adam’s medicines wrote his supporting letter. With the four letters Kevin and I hired a family law attorney. We are now Adam’s Co-conservator, Co-Guardians.

This story is not complete, however this is where I will end my post. Eventually I will return with more of the story. I wanted to share in case someone else may be going through a similar struggle. If so and you have questions, I would be willing to go more in depth with you in a one to one conversation. Send me a message using my contact form.

Take Care. Best wishes, Debra
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My Sunday Snapshot #2

front of sign my Sunday snapshot #2

My Sunday Snapshot #2

Hi, this week my Sunday Snapshot shot was provided after church services. I did not think of anything until I got into my car to leave. It was then that I caught sight of it and then laughed!!

The above image is the welcome sign to the church. This is not an uncommon sign for most businesses and churches to have, right?! Well, then when I left it was when I saw the backside.

back sign my Sunday snapshot #2
Backside of sign as you are leaving the parking lot.

Have a wonderful week!

WW Update:
Since Start Date; -27.4lbs

Take Care. Best wishes, Debra
Gma’s photo

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my Sunday snapshot Pictures can produce so many different emotions and feelings. As they say, an image is worth a thousand words! Share your fun and interesting image from the past week.

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Click here to enter


Coincidence or Divine Intervention?

coincidence or divine intervention

Is it coincidence or divine intervention?

Hi, on Sunday I made good on finding a good Bible based church and Bible study. This is my #50 of my 101 in 1001 goals. I personally do not believe in coincidences. Let me explain why.

During my cancer journey, so many coincidences happened at just the right time. Coincidence 1: Commercial construction had slowed down. Kevin had been laid off from work. He had just returned to work and three weeks later I was diagnosed with cancer.

Coincidence 2: With the lack of work prior, Kevin did not have his 700 hours in to qualify for his insurance premiums to be paid. We had to pay the premium out of pocket for 2 months, still less than the chemo I was getting each month. There was plenty of overtime work for Kevin to reach the 700 hours.

Our family went thru a dark time. It was during this time more coincidences happened. Our son was self medicating. The doctor said it was not a concern of being addicted to ‘drugs’ rather a mental issue.

Coincidence 3: Adam had the same therapist and case manager for 2 years (our darkest). Since then, he has had new therapists about every 6 months. Same with the case managers.

The featured image above was taken at the church I went to this past week. Part of my #50 of my 101 in 1001, attend Bible study. A new church for me. When I walked in, I actually knew several of the members. I felt immediately welcomed, like I was meant to be there.

These were the biggest coincidences with so many more that I have experienced. Too many to ‘not’ believe in God.

For this reason, I say I experienced divine intervention.

WW Update:
Since Start Date; -27.2 lbs

Take Care. Best wishes, Debra
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